Sunday, December 6, 2009

Thank god Progeria is extremely rare disease

If ‘Paa’ would not have been made, majority of Indians would never know what Progeria is.  I think there are about 4-5 cases of this disease in India too. 

Just returned watching R.Balki’s ‘Paa’.  Such a heart touching story by Balki and well enacted by Amitabh Bachchan, Abhishek, Vidhya and everyone else.

Thank god Progeria (Hutchinson-Gilford Progeria syndrome) is extremely rare genetic, but fatal condition.

This was first reported way back in 1886 and presently there are about 40 known cases in the world.  Overall there are 100 cases formally identified in its history.

The child ages 5-6 times the normal age, however the mental condition of the child does not affect, since the nature of this disease is extremely rare, there is no known cure as of now.

Yesterday, in India TV they showed two children challenged by Progeria.  Absolutely normal children who are big fans of Amitabh Bachchan. Everything about them is normal except their age.  After watching ‘Paa’ while returning, I was thinking what happens to the parents of children who are challenged by this fatal disease?

In this movie the father is a rich, intelligent, powerful and wise politician by choice and mother is a gynecologist. Both are rich persons.  And there is ‘Auro’ a very smart kid, a good repartee and quite mature too.  But in real life I wonder about those 40 odd cases... how the parents are coping with the condition?

In this film the director has shown that school authorities keep Auro identity a secret from outside world, and when he is known, a restrain order is taken from court not to give publicity and safeguard the privacy of Auro.  Well that is really good as it is a film and it has to have its own structure to tell a story.  

But I wonder...  in real cases how the parents cope?  This wonderful film leaves you with many questions…

Can World Health Organization give complete and free treatement to children who are challenged by progeria?

Can UN, UNICEF, the respective governments provide financial support and privacy to children and parents?

Go watch ‘Paa’ for its sheer entertainment value, it does not preach and has its moments, great music and as far as the lead child actor Auro is concerned…at the end of film you will not remember Progeria as much as you like Auro...Auro enacted by Amitabh Bachchan with no baritone, no height, nothing as you have seen before.